Keywords
Youth, LGBTI+, sexual and gender minority, wellbeing, protective factors, scoping review
Youth, LGBTI+, sexual and gender minority, wellbeing, protective factors, scoping review
It is accepted that there is “no health without mental health”1, with the World Health Organization describing mental health as “a state of wellbeing”2. While this conceptualisation provides a holistic view of mental health, less clarity exists in relation to understanding the different aspects of mental health, including positive aspects of mental health or the relationship between mental health and social wellbeing3. This may be due to the implicit understandings of this referring solely to difficulties and concerns requiring diagnosis and treatment4–6. These understandings may inform the public discourse with resultant stigmatisation4–6. Research regarding attitudinal changes in the wider Irish population identified greater reluctance to openly share information about mental health concerns in personal and professional relationships4–6. Furthermore, over half the Irish population would not wish others to know if they had a mental health difficulty3. In response, improved mental health and wellbeing have been identified as central to mental health promotion in Ireland with the launch of Connecting for Life: Ireland’s national strategy to reduce suicide 2015–20207. The Strategy outlines protective factors, such as help-seeking and social connectedness; however, the under-development of research into protective factors for mental health, particularly for population-specific target groups, is acknowledged7.
While Connecting for Life adopts a whole-population approach, it identifies specific priority groups, notably those vulnerable to suicide including lesbian, gay, bisexual, transgender, intersex, questioning, queer, asexual, and non-binary (LGBTI+) populations7. The acronym LGBTI+ comprises two dimensions: sexual orientation and gender identity. Sexual orientation refers to identification, behaviour and attraction, with suggestions of a higher life-time prevalence of same-sex behaviour and attraction than identification, and a greater prevalence of bisexual people, particularly bisexual women8. Gender identity refers to someone’s internal sense of their gender as male, female or non-binary, and may not accord with the sex ascribed at birth8. As such, those who identify as transgender and non-binary also have a sexual orientation and may be heterosexual, lesbian/gay, bisexual or asexual8.
The wellbeing of LGBTI+ populations has generated considerable research interest over many decades, often identifying vulnerability to psychological distress, self-harm and suicide, both nationally and internationally7,9. This is often contextualised within a minority stress framework10, highlighting the consequence of stigmatisation, marginalisation and discrimination on the wellbeing of LGBTI+ populations10–12. Particular concern has been expressed in relation to LGBTI+ youth with noted mental health disparities13–15. These concerns also extend to the Irish context7,16–18.
There is a tendency to focus on resultant deficits, with sparse literature on strengths-based approaches which promote and protect LGBTI+ wellbeing19,20. This research approach may assume that, because of the marginalisation of sexual and gender minority youth, these young people are automatically ‘at risk’21,22. Researchers have cautioned against this continued representation which may inadvertently portray young LGBTI+ lives as a trajectory, assuming self-harm and suicidality21–24. It has been emphasised that the research taken to indicate heightened mental health risk fails to emphasise that the vast majority of those who identify as LGBTI+ report positive experiences of mental health and social wellbeing9,21–25. Such generalised and universalising approaches may fail to recognise the range of mental health promoting factors available to LGBTI+ populations, including young people25,26. Furthermore, researchers have emphasised that the dominant research focus on mental health risk for LGBTI+ youth does not identify interventions or suggest solutions19,20. As a result, this representation may unintentionally stigmatise sexual and gender minority young people, with a subsequent decrease in help-seeking17,27. The national and international literature suggesting substantial vulnerabilities among LGBTI+ youth also highlight the importance of understanding factors that can promote wellbeing for this population7,9,17.
The current research imbalance and emphasis on mental health disparities may result in research, policy and practice remaining confined to deficit-focused connotations of LGBTI+ wellbeing17,27. The limitations of the current research focus on monitoring and assessing policy and practice promoting the wellbeing of these populations have been acknowledged7,9,27. Health and social policies are integral to promoting the social acceptance of LGBTI+ people with stark differences noted between countries and over time28. In particular, marked contrasts are evident amongst countries formerly colonised by Britain in relation to decriminalisation of homosexuality29. This can be seen in the Irish context, where despite its history of colonisation, there has been significant progress since 1993 following decriminalisation29. The rapid recognition of LGBTI+ rights was markedly enhanced in 2014 when the Irish Government become a signatory to the Declaration of Intent on the International Day Against Homophobia and Transphobia30. This commitment informed legislative and policy measures including: a referendum and subsequent changes to the constitution to provide for marriage equality; legislation on gender recognition for adults; and the publication of the LGBTI+ National Youth Strategy as part of the programme for government31–33. The strategy was the first of its kind in a global context, with three overarching goals with the third of these prioritising the development of the research and data environment33. This acknowledges the dearth of research internationally and the urgent need for Irish-specific studies to ensure policy and practice is evidence-informed in relation to promoting LGBTI+ youth wellbeing33.
It is within this context that this scoping review is being undertaken and to our knowledge is the first of its kind, informed by a holistic approach to LGBTI+ youth wellbeing, to be conducted on this topic, both nationally and internationally.
The scoping review is part of a broader PhD mixed-methods project which seeks to identify the protective and other factors that may promote the wellbeing of young people who identify as LGBTI+. This first stage of the research process will locate the study within the literature to inform the future development of the qualitative and quantitative aspects of the project34,35. The project is aligned to the Irish LGBTI+ National Youth Strategy and the specific objective to “develop research into the factors that support positive mental health for LGBTI+ young people” (p.31)33.
To the best of our knowledge, there is no existing peer reviewed or published synthesis of the research on LGBTI+ youth wellbeing. This is surprising, given the extensive research focus, over several decades, on LGBTI+ mental health disparities, with specific attention given to youth mental health risk7,9,12–18. The limited research focus on protective factors that promote LGBTI+ wellbeing is noteworthy given that a decade has passed since Haas and colleagues drew attention to the issue9. This group of researchers specifically recommended that studies should be conducted on potentially protective factors, including those that mitigate mental health risk and promote resilience for sexual and gender minority populations9.
The overarching objective of the scoping review is to collect and synthesise the quantitative, qualitative and mixed-methods literature on the protective factors that promote sexual and gender minority youth wellbeing. The review aims to map the concepts, themes and types of available evidence within the existing national and international literature36,37,39. Furthermore, this review will identify research deficits and knowledge gaps in order to inform further research on this topic36–39.
A key strength of the scoping review framework is the priority placed on stakeholder consultation with those with research and policy knowledge or expertise of the topic36,37,39. The consultation will be enhanced by engaging LGBTI+ youth with expertise by experience via focus groups41–43.
The scoping review has the potential to inform policy, practice and future research, particularly through mapping a course forward to guide the planning and the commissioning of future research42–45. A scoping review is particularly appropriate given the provision for a consultation stage as part of the methodological framework36,37,39. The following research question will be considered: What is the extent (that is the size and breadth), range (variation and topic), and nature (characteristics, design, focus) of the evidence on the topic: ‘LGBTI+ – youth – wellbeing’?
Scoping reviews are defined as “a systematic approach to map evidence on a topic and identify main concepts, theories, sources and knowledge gaps” (p 467)39. They assist in charting outcomes across settings and contexts, identifying where research is well-established and where there are gaps in the literature38. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation will be used throughout the review process39. The methodological framework will be followed as outlined by Arksey and O'Malley and Levac, Colquhoun and O’Brien36,37. This consists of six stages: (1) identifying the research question, (2) identifying relevant studies, (3) study selection, (4) charting the data, (5) collating, summarising and reporting results and (6) consultation36,37. While the sixth stage is considered optional within the framework, the authors concur with and Levac, Colquhoun and O’Brien that this process should be prioritised37. This process offers the potential to enhance understandings of the complex interplay of factors that promote wellbeing for sexual and gender minority youth40–42.
These stages of the scoping review will be discussed in further detail below.
Through an initial review of the literature, alongside consultation with key stakeholders within LGBTI+ research networks, the overarching research question is: what is the extent, range, and nature of the peer-reviewed published qualitative, quantitative and mixed-methods evidence regarding LGBTI+ youth wellbeing? This question has been revised or refined through informal the consultation with key stakeholders, consistent with iterative and reflexive approach underpinning scoping reviews42–45. Informed by this approach, a holistic view of wellbeing underpins this review which regards mental health as inclusive of any aspect of experience of mental health, wellbeing and wellness. This acknowledges that while the dominant research focus has been on mental health risk, many of these studies will also include information about factors that promote LGBTI+ youth mental health wellbeing.
In order to identify relevant studies, the search strategy will be underpinned by key inclusion criteria based on the PRISMA checklist for scoping reviews using the Population, Concept, Context (PCC) screening criteria39:
P – Population: sexual and gender minority young people aged 10–24 years
C – Concept: Any mental health, wellbeing or wellness measure
C – Context: Any country (or region) with broadly comparable social acceptance measures
With the limited research attention given to the topic, the scoping review will focus on published, academic, peer reviewed research articles including quantitative, qualitative, and mixed-methods publications. Additionally, review articles will be included, such as: evidence syntheses, systematic reviews, and meta-analyses using quantitative, qualitative, and mixed-methods approaches, scoping reviews, narrative reviews, rapid reviews, and realist reviews. Other types of publication will be excluded from the search (i.e., book chapters, conference abstracts, dissertations, reports etc.) or publications in a language other than English. Based on the advice of the social science liaison librarian, no time limits will be placed on the initial search and the literature from journal inception will be scoped. The scoping review will consider all research with sexual and gender minority youth43. LGBTI+ populations aged between 10 and 24 years will be included, consistent with the National Youth Strategy definition of youth45. Studies with outcomes within a holistic view of wellbeing will be included, that is, including all aspects of mental health and wellness1–3. The review will consider any supportive, health-promoting or protective factors for LGBTI+ youth wellbeing. In light of the continued criminalisation of homosexuality in some parts of the world, with an impact on research and obtaining data, the context will be limited to countries and regions where there are broadly comparable measures of social acceptance of LGBTI+ populations as measured by the Global Acceptance Index28. While this may limit generalisablity, the rapid pace of change, as can be seen in the example of Ireland, may generate interest and be relevant to countries and regions where there is less acceptance28.
Search strategy. A preliminary search was undertaken to establish whether existing scoping reviews had been conducted on the topic or in relation to protective factors for LGBTI+ youth wellbeing. A search for any reviews already conducted or aligning with the topic was undertaken in consultation with the liaison librarian, across the Cochrane Database of Systematic Reviews, Campbell Collection, Epistemonikos and JBI Evidence Synthesis. When this yielded no results, the Database of Abstracts of Reviews of Effects from the National Institute for Health Research and PROSPERO, an international database of systematic reviews regarding health and social wellbeing, were subsequently searched. When no systematic, scoping or any other type of review was identified, an initial keyword search was piloted across three electronic databases: PubMed, PsycINFO and ASSIA. This informed further review of the search strategy with informal consultation undertaken with key stakeholders and LGBTI+ young people to ensure that deliberately broad keywords and search terms were included. In particular, this approach recognises the varied range of terms used to refer to sexual and gender minority communities43. To identify relevant studies, the following terms for sexual and gender minorities will be searched including (Title/Abstract LGBTI OR LGBTQ OR lesbian OR gay OR bisexual OR asexual OR pansexual OR transgender OR intersex OR non-binary OR queer OR “sexual minority” OR “gender minority” OR homosexuality OR bisexuality), combined using AND with terms used for those aged 10–24 years including (Title/Abstract youth OR young person OR “young people” OR “young adult” OR adolescent OR adolescence OR teen OR teenage OR teenager OR juvenile OR minors OR “emerging adult”), combined using AND with terms for wellbeing including (key wellness OR wellbeing OR “mental health” OR “quality of life” OR “happiness with life” OR “life satisfaction” OR resilient OR “resilience”).
The researchers sought the assistance of the librarian to further revise and refine the search strategy for keyword terms and index headings and to identify databases for inclusion. An electronic search strategy will be used to identify databases of the published, peer-reviewed literature. Based on the pilot search and consultation with the liaison librarian, five electronic databases have been selected, containing academic, peer-reviewed journals for systematic searching from inception with relevance to medicine, nursing, psychology, allied health, social sciences and education including: PubMed, CINAHL, PsycINFO, ASSIA and ERIC International. The search strategy for PubMed database can be found in the online supplementary material (see Extended data)47.
The search results will be stored in an electronic referencing system and duplicates removed. Studies will be included for abstract screening if they meet the criteria for Population, Concept, Context as outlined39. Two reviewers will initially screen a small portion of the available evidence independently, to ensure the inclusion and exclusion criteria is clear, firstly screening by title and abstract, with discussion until there is complete agreement regarding inclusion. A third reviewer will be consulted until there is consensus regarding the inclusion and exclusion criteria. Abstracts will subsequently be assessed by two reviewers, independently, with discussion afterward until there is agreement. If a consensus cannot be reached further discussion will take place with a third reviewer until there is an agreed decision to include or exclude the study for analysis. Study selection will be based on a priori inclusion and exclusion criteria as outlined in Table 1 below39. A copy of the screening template is available as Extended data47.
Inclusion | Exclusion |
---|---|
• Study includes participants who self-identify as lesbian, gay, bisexual, transgender, intersex, queer, questioning, asexual or nonbinary | • Heterosexual, cisgender participants only |
• Study with participants aged 10–24 years • Study whereby the majority of study participants are aged between 10–24 years (i.e. more than 50%) | • Study whereby participants are children <10 years or adults >24 years • Study whereby less than 50% of participants are inside the specified age range |
• Study referring to any measures of mental health, wellbeing or wellness | • No reference in article to protective or other factors that promote LGBTI+ youth wellbeing |
• Published in English | • Published in language other than English |
• Peer-reviewed | • Non-peer-reviewed |
• Academic journal article | • Book, dissertation, conference abstract, report etc. |
• Study conducted in a country (or region) with a broadly similar Global Acceptance Index rank | • Study conducted in a country (or region) with a widely disparate Global Acceptance Index rank28 |
Queries for discussion will be recorded using a written template (see Extended data)47. A table with excluded studies and reasons for exclusion will be generated based on this a priori criteria. The study team will be consulted throughout this process of selecting sources of evidence. The final step includes citation searching of the studies where the reference lists of the included articles will be reviewed using the citation function of Google Scholar to search for additional studies, supplemented by reference searching36,37,39.
The data extraction process in scoping reviews is referred to as ‘charting’ the data36,37,39. A data extraction tool will be developed and piloted by the research team to provide a written overview of the key information to be captured in a summary table39. This will record the following information: author(s); year of publication; country where study was conducted; aims/purpose of the study; methodology/methods; study population and sample size; outcomes and key findings in relation to the scoping review questions. The project lead will complete a full-text review and extract the data according to the summary table. All variables will be identified including assumptions and simplifications. The summary table will be tested by the study team to check a random sample of the completed data extracted. Consultation will take place with the study team throughout this process. This will establish processes for obtaining and confirming data. Where there is disagreement, the study team will be consulted until there is a decision to include or exclude a study. It is anticipated that completion of the summary table will be an iterative and reflexive process36,37,39.
The PRISMA-ScR checklist for reporting scoping reviews will be used39. A rationale for collating the results will describe the methods and the use of this information in any data synthesis will be outlined39. The methods of handling and summarising the charted data will be described39. The selection of sources of evidence will be outlined using a flow diagram39. The characteristics of sources of evidence will be described and cited, with the results synthesised and summarised39. It is anticipated that there will be variation in study design and method. A general interpretation will be provided along with potential implications and limitations of the scoping review39.
Stakeholder consultation. A scoping review provides for a consultation stage as part of the methodological framework39. Levac, Colquhoun and O’Brien recommend that this stage is a requirement for a scoping review as it enhances methodological rigor37. The consultation will be undertaken with stakeholders recruited through a purposive sampling approach44. This widely used technique is considered particularly useful in identifying and selecting research and policy stakeholders who have particular knowledge about the research question44. The consultation comprises three phases: (1) search phase: reviewing and revising search terms and inclusion/exclusion criteria; (2) analysis phase: an iterative refinement of included sources of evidence and relevant data (3) findings: critical appraisal to ensure correct data interpretation and suggestions for knowledge translation36,37,39. This will be enhanced by public patient involvement (PPI) through focus groups with LGBTI+ young people.
Patient and public involvement. Involvement of young people in research processes is increasingly emphasised by researchers, policy makers and practitioners40–42. The provision within the framework for a consultation stage aligns with the objectives of the study and recognises LGBTI+ youth expertise, the social and cultural capital within youth networks and youth agency regarding their mental health and wellbeing40–42. PPI approaches recognise that the inclusion, engagement and participation of young people in research is both child-centred and rights-based42. Focus groups will use interactive participatory approaches to share the findings from the scoping review to explore LGBTI+ young people’s understandings, meanings and interpretations41. In Ireland, it is acknowledged that some young people are seldom-heard, including sexual and gender minority youth41. Baker and Beagan call for collaboration that promotes ‘learning with’ LGBTI+ communities46. This recognises that young people can and should be more involved in all stages of the research process, not just in providing data to researchers40–42. This will inform further synthesis of the review.
Ethical approval has been granted from the UCD Humanities Research Ethics Committee to undertake consultations on the scoping review findings with stakeholders and to conduct focus groups with young people (Ref#: HS-19-80-Ceatha-Campbell ). It is hoped that the involvement of sexual and gender minority youth will provide insights into research dissemination with these populations of young people, their families and with professionals in health, social care and education42. The research team anticipate that the results will be disseminated through a peer reviewed publication, a conference presentation and presentations to the key stakeholders, including LGBTI+ youth.
To our knowledge, this will be the first scoping review exploring the protective factors that promote the wellbeing of sexual and gender minority youth, including young people who self-identify as LGBTI+. Drawing on Arksey and O'Malley’s methodological framework, the search strategy will map the established quantitative, qualitative and mixed-methods evidence of the protective factors currently considered, identify research gaps and provide recommendations. The PRISMA Extension for Scoping Reviews (PRISMA-ScR) checklist will be used throughout the review process in order to ensure transparency and enhancing the potential for replication. Stakeholder consultation is a key strength of the scoping review process and will engage with a range of people with expertise in the research and policy fields. This will be complemented by PPI of sexual and gender minority youth through interactive, participatory focus groups. This offers a unique opportunity to include LGBTI+ young people with expertise by experience in the research process. A recognised limitation of scoping reviews is that they do not assess the quality of studies, like the more traditional systematic review. However, a scoping review methodology has the capacity to collect a great quantity of different types of literature. This is of particular relevance when there is little known or published about a topic area. This could inform the design of future full systematic reviews on this subject area by demonstrating the breadth and nature of the literature to date.
Open Science Framework: Scoping review protocol on protective factors that promote LGBTI+ youth wellbeing. https://doi.org/10.17605/OSF.IO/PM5AX47.
This project contains the following extended data:
PubMed search scoping review OSF (DOCX). (PubMed search string to be used in the scoping review.)
Screening criteria using Population, Concept, Context for OSF (DOCX). (Screening criteria to be used in the scoping review.)
Screening template using PCC criteria and inclusion criteria OSF (DOCX). (Eligibility criteria screening template to be used in the scoping review.)
Extended data are available under the terms of the Creative Commons Zero "No rights reserved" data waiver (CC0 1.0 Public domain dedication).
Is the rationale for, and objectives of, the study clearly described?
Yes
Is the study design appropriate for the research question?
Yes
Are sufficient details of the methods provided to allow replication by others?
Yes
Are the datasets clearly presented in a useable and accessible format?
Not applicable
References
1. Johns MM, Beltran O, Armstrong HL, Jayne PE, et al.: Protective Factors Among Transgender and Gender Variant Youth: A Systematic Review by Socioecological Level.J Prim Prev. 39 (3): 263-301 PubMed Abstract | Publisher Full TextCompeting Interests: No competing interests were disclosed.
Reviewer Expertise: Sexual and gender minority health, sexual health, mental health, stigma, resilience.
Is the rationale for, and objectives of, the study clearly described?
Yes
Is the study design appropriate for the research question?
Yes
Are sufficient details of the methods provided to allow replication by others?
Partly
Are the datasets clearly presented in a useable and accessible format?
Not applicable
References
1. Lee JG, Ylioja T, Lackey M: Identifying Lesbian, Gay, Bisexual, and Transgender Search Terminology: A Systematic Review of Health Systematic Reviews.PLoS One. 2016; 11 (5): e0156210 PubMed Abstract | Publisher Full TextCompeting Interests: No competing interests were disclosed.
Reviewer Expertise: Youth mental health, LGBTIQ mental health, prevention of mental illness.
Alongside their report, reviewers assign a status to the article:
Invited Reviewers | ||
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1 | 2 | |
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Version 1 30 Mar 20 |
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